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Support Groups

Each support group has its own personality, which can change over time, depending on the group leader and participants. Online support groupshttp://community.lbda.org/forum/http://health.groups.yahoo.com/group/lbdcaregivershttp://health.groups.yahoo.com/group/lbd_caringspouses Local support groups US and Canada:  http://www.lbda.org/category/4185/local-support-groups.htmSuggestion:  join local Parkinson's Disease support groups and local Alzheimer's Disease support groups, if available and appropriate   Telephone Support LBDA Helpline for Caregivers:  tollfree phone 800/539-9767 Other online communities LBDA Online Chat Room:  http://www.lbda.org/index.cfm?fuseaction=page.display&page_id=55 LBDA on Facebook:  http://www.facebook.com/group.php?gid=91235533029 LBDA on LinkedIn:  http://www.linkedin.com/groups?gid=1107077   Local Parkinson's Disease support groups Suggestion:  join local Parkinson's Disease support groups, if available and appropriate.  Two national PD organizations work with local PD support groups: National Parkinson Foundation lists some PD support groups in the US and many ...

Lewy Body Dementia | | Saturday, 15 August 2009 | Hits: 1185

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Top Resources

We have looked at all the resources available on the general topic of atypical parkinsonism or Parkinson's Plus.  These are the best: "Atypical Parkinsonism"By Lawrence I. Golbe, MD, Professor of Neurology, UMDNJ-Robert Wood Johnson Medical School, New Brunswick, N.J.American Parkinson Disease Association (APDA), Winter 2008 NewsletterOverview article appears on page 1http://www.apdaparkinson.org/data/NewsLetterUpload/2008_APDA%20Winter%2008.pdf "Understanding Parkinson’s Plus Syndromes and Atypical Parkinsonism"By Parkinson's Disease FoundationThis fact sheet provides a general description of the four atypical parkinsonism disordershttp://www.pdf.org/pdf/FactSheet_UnderstandingPPS&ATP.pdf "Cognitive Profiles of Parkinsonian Syndromes" - Typical Features and Comparison of ProfilesBy Thomas Bak, ACNR, Volume 6 Number 5, November/December 2006See especially "Typical features of different parkinsonian syndromes" (Table 1) ...

Atypical Parkinsonism/Parkinson's Plus | | Saturday, 15 August 2009 | Hits: 1408

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Top Resources

We have looked at all the resources available on LBD (Lewy Body Dementia).  These are the best: "Facts About LBD" Folded brochure from the Lewy Body Dementia Associationhttp://www.lbda.org/feature/1925/facts-about-lbd-brochure.htm"An Introduction to Lewy Body Dementia"Folded brochure for the newly-diagnosed from the Lewy Body Dementia Associationhttp://www.lbda.org/feature/1942/an-introduction-to-lewy-body-dementia.htm"A Comprehensive Approach to Treatment can Significantly Improve the Quality of Life of Patients with the Lewy Body Dementias"This short piece about how MDs all-too-frequently write off those with dementia was written by Brad Boeve, MD, a neurologist with the Mayo Clinic in Rochester, for the Lewy Body Dementia Association.http://www.brainmatters.info/index.php?option=com_content&view=article&id=67&Itemid=71 "Parkinson Disease: Mind, Mood & Memory" Booklet written by the ...

Lewy Body Dementia | | Saturday, 15 August 2009 | Hits: 1455

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